The nutrition challenges in EB are as varied as the disease itself. Dietary demands of patients depend on the form of the EB they have and also on their stage of life.
Nutritional needs for people with EB can change from childhood to adolescence and adulthood. A factor that is becoming more and more relevant in more severe forms of EB is anemia. This common secondary effect of EB was an important part of the agenda of this seminar, presented by the speaker Anna L. Bruckner, MD, MSCS (Professor of Dermatology and Pediatrics at the University of Colorado School of Medicine and Dermatology Director of the EB Clinic at Children's Hospital Colorado).
Clinical practice guidelines (CPGs) are recommendations for physicians for the treatment and care of patients with certain conditions developed by DEBRA International.
