DEBRA Chile recently published a manual in Spanish about the general treatment of EB patients - 'Manual de manejo general de pacientes con Epidermolisis Bulosa - Niños piel de cristal'.
The manual's main objective is to give a short description about the disease and some recommendations for the treatment of EB skin and wounds, according to the Chilean reality. DEBRA Chile hopes that the manual will be a support for Spanish-speaking patients and their families, caregivers and health care professionals to improve the quality of life of many people living with EB.
Please click here to download the complete manual (PDF, 42,4 MB)