Guidelines and therapy options
Treatment Standards for EB
The rapid expansion of knowledge about EB over the past decade has resulted in the emergence of a diverse range of treatment recommendations. It also has led to a higher focus on translating research success into clinical benefit, with the aim to test new therapy approaches and establish further treatment options for people living with EB.
The following section outlines the currently available clinical practice guidelines (CPGs) and available therapeutic options. Clinical practice guidelines are evidence based recommendations for physicians for the treatment and care of patients with certain conditions.
EB Clinet supports DEBRA International in undertaking a long-term initiative to develop clinical practice guidelines (CPGs) for EB.
Clinical Practice Guidelines
- offer instructions for adequate treatment based on the best available scientific evidence and a broad consensus
- ensure appropriate care and support the decision-making process in clinical practice
- encourage and provide suggestions for further education
- foster the efficient use of resources
- build a basis for quality control
- identify lacks in the existing literature and support corresponding future research